Saturday, September 12, 2015

Onward and Upward - 2nd Updose!

Three trips down, only about twenty three more to go. Hopefully. And worth every mile. Although admittedly I cannot understand why I live in what is supposed to be a medical mecca and yet still have to drive three hours one way for this treatment. But now that I have met Dr. Mayer I might still drive the three hours even if it was available here!

After a couple episodes of vomiting (reflux) way outside of the dosing "rest/observation period" of two hours after her last updose, it was smooth sailing the last eight days. With the exception of one skipped dose due to a returning ear infection. We were safely able to updose again! And we were ready. Ten milligrams of peanut protein here we come!



After a quick bike ride and lovely picnic lunch to shake off the cobwebs from the drive, we arrived just after two thirty and were whisked back to the common room by the amazing and one-and-only Eileen. During our previous trips we have always had a private room, so this was our first time in a room with other OIT Moms and kids. And what an awesome experience it was. We witnessed a graduation, and these brave kids overcoming their own personal poison.  How refreshing it is to be in a room with other Moms that just completely get it. Don't get me wrong, all of our family and friends are amazing and incredibly accommodating and I thank God for that, but there is just something about the support of others that are going through it or have gone through it. It was truly inspiring. 

Now we are four days into the new dosage, and she has had a couple minor reflux episodes, although without vomiting this time. I understand this is quite common during the early stages, and if anything has reinforced for me how important it is for us to do this.  And just for the benefit of those considering OIT, she is completely fine before and after. She does not feel ill at all.  She is strong and determined.  (And not to mention can't wait to eat at a real ice cream parlor!). 

This is a marathon for us, not a sprint. So now we anxiously, but patiently, await twenty five milligrams.  Onward and upward!



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